Authors

Adam Jaffe

BSc (Hons), MD, FRCP, FRCPCH, FRACP, FThorSoc, John Beveridge Professor of Paediatrics, and Head, Discipline of Paediatrics and Child Health, School of Clinical Medicine, Faculty of Medicine & Health, UNSW Sydney, Sydney, NSW; Consultant in Respiratory Medicine, Sydney Children’s Hospitals Network (Randwick), Sydney, NSW

Clarifying the complex: New guidance for rare disease care

This article outlines the challenges faced by people living with rare disease and highlights supportive resources for GPs to provide, facilitate and coordinate care.